Getting Started
Please note that mid-2023 marks the close of our genomic data generation activities for the foreseeable future. Below is a schematic for the steps to join the collaborative if there is a new call for DNA samples.
To enter your clinical data into the Epi25 REDCap database:
Entry of phenotypic data is required for all samples sequenced as part of Epi25. The phenotypic data (forms online here) is a set of critical data elements that is usually a subset of the research data collected on behalf of the original collaborator's research project or in the participant's research record.
Make sure you know your Epi25 site identifier, which was assigned to your site when you have joined the collaborative. You will need to enter the phenotype data using the Epi25 IDs (format: Epi25 site identifier + local subject ID). This is necessary to match the genomic data with the phenotypic data
Most collaborators enter their data directly into the RedCap phenotypic forms (forms online here ) from the participant's research records. If you need access to REDCap, please email Roland Krause. Please always use institutional e-mail addresses and obtain a login for every user accessing the database.
Some collaborators have most of this phenotypic data in a structured database and can import the data directly into the Epi25 database. If you have clinical data in a structured database, you can contact Roland Krause to arrange upload into the Epi25 clinical database.
Please use the Epi25 IDs with any submitted phenotypic data -- this is necessary to match the genomic data with the phenotypic data!
Note that you must provide corresponding phenotypic data BEFORE receiving genomic data.
